Corruption is a destructive factor in society and unofficially bypasses the law. Our silence reinforces corruption and we are therefore all responsible for the consequences.
The sad story of Stefan Dan is known to many people from the book Buch „Krebsmittel Ukrain - Kriminalgeschichte einer Verhinderung“ von Dr. Eleonore Thun-Hohenstein (Molden Verlag, Vienna 2004), many press reports, (Link 1, Link 2, Link 3) from television ("Die Redaktion spezial", RTL2; "Mona Lisa", ZDF, 10 October 2004, 18:00, http://www.presseportal.de/meldung/604528) as well as from the specialist literature. (Link)
In 1993 the Arzneimittelbeirat (Pharmaceutical Advisory Board) at the Austrian Ministry of Health advised the use of Ukrain in accordance with § 42. (Link) In April 1995 Stefan's parents came to us with their sick child and a doctor's prescription. All that could be seen of the child was tumours, bones and praying eyes. Diagnosis – generalised lymphangiomatosis. From the medical records of the Universitätsklinik für Kinderheilkunde, Vienna: "After consultation with our oncologist tumour progression cannot be counteracted either by chemotherapy or radiotherapy. Surgery is also no longer possible so that further therapy can only be palliative." (Link). At the time we did not have the faintest hope of saving the child but did not want to deny his parents' a last chance. Unfortunately the photos taken at the time have mysteriously disappeared.
During treatment an unexpected improvement occurred. (See photo in children's seat, 21 July 1995.)
After further Ukrain therapy the tumours almost disappeared. The child could talk, play, walk and even ride a bicycle.
Therapy had not been concluded but despite such success the parents were forced to interrupt treatment with the threat of a prison sentence. (Link) As a result tumours on his back continued to grow. (Link, see photo)
A large tumour on his back was removed by surgery but a new one grew in his stomach.
From the surgical report on 24 March 2000: "Indication: generalised lymphangiomatose (intraabdominal/thoracolumbal), severe lipomatosis dorsi, severe thorax deformity; … extreme cachexia … The whole back area is arched outwards spherically because of the enormous tumour tissue... The tumour tissue also continues through the wall of the thorax. Radical surgery can certainly not be discussed."
The child's condition continued to deteriorate.
5 April 2000 – X-ray examination: "In today's x-ray ... increasingly restricted ventilation of the right lung can be observed."
6 April 2000 – Tapping of ascites with ultrasonic monitoring. "1,600 ml of a yellowish-greenish exudate could be tapped."
20 April 2000 – Tracheostomy (cut in the windpipe with the application of a canula for possible connection to a respirator).
24 May 2000 – Ultrasonic examination: "The liver is considerably enlarged... Pronounced splenomegaly (spleen enlargement)."
3 June 2000 – Patient connected to a respirator.
19 June 2000 – Ultrasonic examination: further liver enlargement up to 14 cm. Several lymph angiomas.
23 August 2000 – "Excision of necrotic tissue" (Removal of dead tissue above the right hip).
The condition of the child on being discharged from hospital was as follows: "Exsiccosis (drying out). St. febrilis (fever). Decubital ulcera (pressure sores) above the right hip and on the right shoulder blade.. Anemia (1 Ery-concentrate – blood bottle - given). Cachexia (complete loss of strength). hyponatremia (decreased natrium level in blood). Intercostal (between the ribs) and thoracal lymph angioma with generalised lymph angiomatosis. Partial paralysis from Th5 (paralysed by a transverse lesion of the cored). Ascites (free fluid in the stomach). Home respiration therapy (respirator). Tracheostoma (canula in the windpipe). Status on discharge: weight 19.3 kg, waist 61 cm."
With the child in this already almost hopeless condition Ukrain therapy was begun again at the end of September 2000. The condition of the child gradually improved. (Link)
"During therapy the pain has been reduced and all pain killers have been terminated. Breathing has improved and no respirator is now necessary. Severe pressure sores have healed (see photo) and considerable skin defects have been completely covered without plastic-surgical intervention. Tumours in the stomach and other parts of the body have regressed during the course of Ukrain therapy.
Stefan is now 18 years old. He is intelligent, can read, write and paint and plays the piano but is unfortunately lamed for life through the incomprehensible prohibition of Ukrain therapy.
Stefan is 18 years old.